Off-topic, and close to home
I haven’t written much about this here, but many of my friends in the OER community know that my son Daniel underwent treatment for kidney cancer a year and a half ago. Since that time, I’ve learned a lot about the state of research in the field of pediatric cancer. My wife and I will be forever grateful for the immense amount of research that’s been done with woefully little in the way of funding. Thanks to that research, the rates of cure for many childhood cancers are remarkably high. We also know through our contacts with other families with children battling cancer that those rates are not nearly high enough, and the treatments themselves are often far too damaging.
We’ve worked to raise what money we can for the wonderful people over at the Jimmy Fund Clinic, and will be participating in this fall’s Boston Marathon Jimmy Fund Walk. Last year, we raised over $10,000 as a team, and this year we hope to do better. Our team page can be found here, and you can read more about Daniel’s treatment on his CaringBridge site, where my wife has kept a remarkable journal of his treatment. We welcome support from friends and family–consider a donation or join us for the walk.
I’m also pleased to note the passage of the Caroline Pryce Walker Conquer Childhood Cancer Act, which also brings much-needed funding to pediatric cancer research. It’s a huge step in the right direction.